What you have to prove
Show one of: (A) disorganization of motor function in two extremities with extreme limitation; OR (B) bulbar and neuromuscular dysfunction with difficulty with respiratory support, swallowing, or speaking.
Medical evidence SSA expects
Neurology records (preferably neuromuscular specialist), EMG/NCS, genetic testing if applicable, pulmonary function tests, and speech/swallow evaluations.
Common misconceptions
Early PLS with mild spasticity may not qualify. SMA Type 1 in adults and advanced PMA typically meet the listing.
Didn't meet the listing? You can still qualify via a Medical-Vocational
Allowance — SSA's determination that your residual functional capacity, combined with
your age, education, and work history, leaves no jobs you can do. See our
appeals guide for what to do after an initial denial.