What you have to prove
Show one of: (A) repeated complications of hemorrhage despite prescribed treatment (three or more hospitalizations within 12 months at least 30 days apart, each requiring transfusion); OR (B) thrombosis and embolism — three or more thromboembolic events within 12 months at least 30 days apart despite prescribed anticoagulant treatment.
Medical evidence SSA expects
CBC trends, PT/PTT, factor level assays, hospitalization records for each event, and hematologist notes.
Common misconceptions
Well-controlled hemophilia on prophylactic factor therapy rarely meets the listing. Patients with inhibitors or repeated bleeds despite treatment qualify more readily.