What you have to prove
A catastrophic congenital disorder listed in SSA's Compassionate Allowances list, documented by clinical findings or genetic testing.
Medical evidence SSA expects
Genetic test results, pediatric or neonatal records, and specialist evaluations.
Common misconceptions
The Compassionate Allowances list is updated regularly — catastrophic conditions approved within days. Examples include Tay-Sachs, Canavan, and leukodystrophies.
Didn't meet the listing? You can still qualify via a Medical-Vocational
Allowance — SSA's determination that your residual functional capacity, combined with
your age, education, and work history, leaves no jobs you can do. See our
appeals guide for what to do after an initial denial.